{"id":6894,"date":"2023-08-26T19:13:00","date_gmt":"2023-08-26T12:13:00","guid":{"rendered":"https:\/\/loudhdtv.com\/?p=6894"},"modified":"2023-08-26T19:13:00","modified_gmt":"2023-08-26T12:13:00","slug":"i-had-bizarre-symptoms-for-years-before-this-autoimmune-diagnosis","status":"publish","type":"post","link":"https:\/\/loudhdtv.com\/?p=6894","title":{"rendered":"I Had Bizarre Symptoms For Years Before This Autoimmune Diagnosis"},"content":{"rendered":"<p> <script async src=\"https:\/\/pagead2.googlesyndication.com\/pagead\/js\/adsbygoogle.js?client=ca-pub-3711241968723425\"\r\n     crossorigin=\"anonymous\"><\/script><br \/>\n<br \/><img decoding=\"async\" src=\"https:\/\/mindbodygreen-res.cloudinary.com\/image\/upload\/c_fill,w_700,h_400,g_auto,q_85,fl_lossy,f_jpg\/org\/oqklgtamllh0ov7q2.jpeg\" \/><\/p>\n<div>\n<p>I felt waves of emotions (fear, relief, validation) before anger set in. My years-long mysterious condition was a full-fledged epidemic affecting 1 in 5 Americans, and I wanted to shout it from the rooftops so others wouldn\u2019t have to go through this, too.\u00a0<\/p>\n<p>New to TikTok, I posted a video about the symptoms I was told were \u201cnormal\u201d that turned out to be signs of autoimmune disease. To my shock, it racked up millions of views in a matter of hours, and thousands of comments from women reaching out with eerily similar experiences.\u00a0<\/p>\n<p>Search #autoimmunedisease on TikTok and you\u2019ll get a very real and terrifying snapshot of this epidemic\u2019s stronghold on women in America: over 1.1B video views, and countless thumbnails featuring the faces of twenty- and thirty-somethings just like me. We\u2019re turning to TikTok for the autoimmune support our medical system isn\u2019t giving us.\u00a0<\/p>\n<p>The autoimmune epidemic disproportionately wreaks havoc on women \u2013 <span data-citation-wrapper=\"\"><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC7292717\/\" data-citation-link=\"\">80% of patients are women<\/a><a href=\"#citations\" data-citation-number=\"1\">1<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"11\" height=\"10\" viewbox=\"0 0 11 10\"><path d=\"M10.5616 1.47255C10.7935 1.16327 10.7308 0.724508 10.4216 0.492549C10.1123 0.26059 9.67352 0.323271 9.44156 0.63255L4.41852 7.32996L2.03106 4.54448C1.77947 4.25094 1.33756 4.21694 1.04403 4.46853C0.750497 4.72012 0.716495 5.16203 0.968084 5.45556L3.77335 8.72851C3.81859 8.84955 3.89785 8.9595 4.0089 9.04279C4.09758 9.1093 4.19691 9.15159 4.29895 9.17078C4.51931 9.23643 4.76744 9.19227 4.955 9.03151C5.07764 8.92639 5.15498 8.78804 5.18511 8.64118L10.5616 1.47255Z\"\/><\/svg><\/a><\/span>, and certain conditions are <span data-citation-wrapper=\"\"><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC7292717\/\" data-citation-link=\"\">16 times more common<\/a><a href=\"#citations\" data-citation-number=\"1\">1<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"11\" height=\"10\" viewbox=\"0 0 11 10\"><path d=\"M10.5616 1.47255C10.7935 1.16327 10.7308 0.724508 10.4216 0.492549C10.1123 0.26059 9.67352 0.323271 9.44156 0.63255L4.41852 7.32996L2.03106 4.54448C1.77947 4.25094 1.33756 4.21694 1.04403 4.46853C0.750497 4.72012 0.716495 5.16203 0.968084 5.45556L3.77335 8.72851C3.81859 8.84955 3.89785 8.9595 4.0089 9.04279C4.09758 9.1093 4.19691 9.15159 4.29895 9.17078C4.51931 9.23643 4.76744 9.19227 4.955 9.03151C5.07764 8.92639 5.15498 8.78804 5.18511 8.64118L10.5616 1.47255Z\"\/><\/svg><\/a><\/span> in women. They are one of the <a href=\"https:\/\/academic.oup.com\/rheumatology\/article\/60\/3\/1321\/5908065\">top 10 causes of death for women under 64<\/a>. Despite all of this, autoimmune disease remains largely overlooked and misdiagnosed by healthcare professionals. On average, we have to see 5 different doctors and wait nearly half a decade before receiving the correct diagnosis. Almost half of us are told our symptoms are all in our head at some point along the way.<\/p>\n<p>It was no coincidence when my sister, Claire, was diagnosed with autoimmune disease months later. She had similar, hard-to-pinpoint symptoms, normal labs, and dismissals from various doctors.<\/p>\n<p>Getting healthy again quickly became a full-time job for both of us. We threw ourselves into learning everything there was to know about these diseases, and what evidence-based interventions would bring us the most relief. As we dove into the research, it became abundantly clear how underserved our community was and how desperately we needed better support and tools. So we decided to team up and left our full-time jobs to fill the major systemic gaps that exist in today\u2019s standard of care.<\/p>\n<p>Last year, we launched a virtual care platform called <a href=\"https:\/\/www.welltheory.com\/\" rel=\"nofollow\">WellTheory<\/a> to help women shortcut, and ultimately improve, the current path to an autoimmune diagnosis and receiving care. Our goal is to increase access to high-quality autoimmune care \u2013 making it affordable, empathetic, empowering, effective, and what we so desperately needed from the beginning.\u00a0<\/p>\n<p>But WellTheory is just one piece of the equation to reversing autoimmune disease. More broadly, it takes arming women with the resources to navigate the under researched and overlooked health issues that affect us the most \u2013 from fertility and menopause to autoimmune disease and beyond.\u00a0<\/p>\n<\/div>\n<div data-type=\"_mgwidget\" data-widget-id=\"1675549\">\r\n<\/div>\r\n<script>(function(w,q){w[q]=w[q]||[];w[q].push([\"_mgc.load\"])})(window,\"_mgq\");\r\n<\/script>\r\n\n","protected":false},"excerpt":{"rendered":"<p>I felt waves of emotions (fear, relief, validation) before anger set in. My years-long mysterious condition was a full-fledged epidemic affecting 1 in 5 Americans, and I wanted to shout it from the rooftops so others wouldn\u2019t have to go through this, too.\u00a0 New to TikTok, I posted a video about the symptoms I was &hellip;<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[227,123],"class_list":["post-6894","post","type-post","status-publish","format-standard","hentry","category-lifestyle","tag-autoimmune","tag-invisible-illness"],"aioseo_notices":[],"aioseo_head":"\n\t\t<!-- All in One SEO 4.9.8 - aioseo.com -->\n\t<meta name=\"description\" content=\"I felt waves of emotions (fear, relief, validation) before anger set in. 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