{"id":12376,"date":"2023-08-01T02:39:53","date_gmt":"2023-07-31T19:39:53","guid":{"rendered":"https:\/\/loudhdtv.com\/?p=12376"},"modified":"2023-08-01T02:39:53","modified_gmt":"2023-07-31T19:39:53","slug":"declans-journey-with-fibro-adipose-vascular-anomaly-fava","status":"publish","type":"post","link":"https:\/\/loudhdtv.com\/?p=12376","title":{"rendered":"Declan\u2019s Journey with Fibro Adipose Vascular Anomaly FAVA"},"content":{"rendered":"<p> <script async src=\"https:\/\/pagead2.googlesyndication.com\/pagead\/js\/adsbygoogle.js?client=ca-pub-3711241968723425\"\r\n     crossorigin=\"anonymous\"><\/script><br \/>\n<iframe loading=\"lazy\"  width=\"580\" height=\"385\" src=\"https:\/\/www.youtube.com\/embed\/8aP_wFewZhA?autoplay=1&#038;cc_load_policy=1&#038;modestbranding=1\" frameborder=\"0\" allowfullscreen><\/iframe><br \/>\n<br \/>At 14, Declan woke up with immense, unexplained pain in his arm. He thought it might be caused by growth or cramps, but an X-ray showed that Declan had no normal structure in his arm. <\/p>\n<p>\u201cThere wasn\u2019t an explanation for just how much pain he was in just looking at his arm,\u201d says Taizo Nakano, MD, Medical Director of our Vascular Anomalies Center. <\/p>\n<p>After ruling out other conditions, our team diagnosed Declan with fibro-adipose vascular anomaly (FAVA), which stems from a mutation in a gene called PIK3CA. This makes the signal that turns cell growth on and off stay on, causing overgrowth of materials in Declan\u2019s arm. <\/p>\n<p>In collaboration with Boston Children\u2019s Hospital, Dr. Nakano, and Aparna Annam, DO, Interventional Radiology Director of the Vascular Anomalies Center, performed a unique surgery that gave Declan full use of his arm once again. Now on his way to college, Declan is excited for his future. <\/p>\n<p>\u201cI\u2019m basically perfectly healthy,\u201d says Declan. \u201cI take no medication for it. I can just do whatever I want now.\u201d <\/p>\n<p>To learn more about how our care team at the Vascular Anomalies Center is pioneering treatment, visit:  https:\/\/www.childrenscolorado.org\/doctors-and-departments\/departments\/vascular-anomalies\/?utm_source=youtube&#038;utm_medium=social&#038;utm_campaign=slg_ccbd  <\/p>\n<p>Connect with Children\u2019s Colorado:<br \/>\nInstagram: https:\/\/www.instagram.com\/childrenscolo<br \/>\nFacebook: https:\/\/www.facebook.com\/childrenshospitalcolorado<br \/>\nTwitter: https:\/\/twitter.com\/ChildrensColo<br \/>\nLinkedIn: https:\/\/www.linkedin.com\/company\/children&#8217;s-hospital-colorado<br \/>\nWebsite: http:\/\/www.childrenscolorado.org<br \/>\n<br \/><a href=\"https:\/\/www.youtube.com\/watch?v=8aP_wFewZhA\">source<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>At 14, Declan woke up with immense, unexplained pain in his arm. He thought it might be caused by growth or cramps, but an X-ray showed that Declan had no normal structure in his arm. \u201cThere wasn\u2019t an explanation for just how much pain he was in just looking at his arm,\u201d says Taizo Nakano, &hellip;<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4],"tags":[],"class_list":["post-12376","post","type-post","status-publish","format-standard","hentry","category-health"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/loudhdtv.com\/index.php?rest_route=\/wp\/v2\/posts\/12376","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/loudhdtv.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/loudhdtv.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/loudhdtv.com\/index.php?rest_route=\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/loudhdtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=12376"}],"version-history":[{"count":0,"href":"https:\/\/loudhdtv.com\/index.php?rest_route=\/wp\/v2\/posts\/12376\/revisions"}],"wp:attachment":[{"href":"https:\/\/loudhdtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=12376"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/loudhdtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=12376"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/loudhdtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=12376"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}