{"id":10790,"date":"2024-04-29T20:30:04","date_gmt":"2024-04-29T13:30:04","guid":{"rendered":"https:\/\/loudhdtv.com\/?p=10790"},"modified":"2024-04-29T20:30:04","modified_gmt":"2024-04-29T13:30:04","slug":"jonnies-story-improving-care-through-cardiovascular-genetics","status":"publish","type":"post","link":"https:\/\/loudhdtv.com\/?p=10790","title":{"rendered":"Jonnie\u2019s Story: Improving Care through Cardiovascular Genetics"},"content":{"rendered":"<p><iframe loading=\"lazy\"  width=\"580\" height=\"385\" src=\"https:\/\/www.youtube.com\/embed\/4ouXPIv0_Vw?autoplay=1&#038;cc_load_policy=1&#038;modestbranding=1\" frameborder=\"0\" allowfullscreen><\/iframe><br \/>\n<br \/>Jonnie had heart surgery very early in life but it wasn\u2019t until years later that doctors and his parents fully understood his condition. He missed growth and health milestones for a couple years.<\/p>\n<p>\u201cWe didn\u2019t understand why he was facing all these challenges,\u201d says his father, Drew.<\/p>\n<p>Drew and Jonnie\u2019s mother, Rachel, took him for genetic testing. Suddenly, everything made a lot more sense.<\/p>\n<p>Jonnie has multisystem smooth muscle dysfunction syndrome (MSMDS), an extremely rare disease that only about 50 people (mostly kids) have in the entire world.  Dr. Kathryn Chatfield, a genetic pediatric cardiologist, treats three of them at Children\u2019s Hospital Colorado \u2014 and now Jonnie.<\/p>\n<p>\u201cIt changed our life, and it changed Jonnie\u2019s life,\u201d says Rachel.<\/p>\n<p>#CardiacGenetics #PediatricCardiology #Shorts<br \/>\n<br \/><a href=\"https:\/\/www.youtube.com\/watch?v=4ouXPIv0_Vw\">source<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Jonnie had heart surgery very early in life but it wasn\u2019t until years later that doctors and his parents fully understood his condition. He missed growth and health milestones for a couple years. \u201cWe didn\u2019t understand why he was facing all these challenges,\u201d says his father, Drew. Drew and Jonnie\u2019s mother, Rachel, took him for &hellip;<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4],"tags":[],"class_list":["post-10790","post","type-post","status-publish","format-standard","hentry","category-health"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/loudhdtv.com\/index.php?rest_route=\/wp\/v2\/posts\/10790","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/loudhdtv.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/loudhdtv.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/loudhdtv.com\/index.php?rest_route=\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/loudhdtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=10790"}],"version-history":[{"count":0,"href":"https:\/\/loudhdtv.com\/index.php?rest_route=\/wp\/v2\/posts\/10790\/revisions"}],"wp:attachment":[{"href":"https:\/\/loudhdtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=10790"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/loudhdtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=10790"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/loudhdtv.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=10790"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}